Questionnaire for Assessment of Quality of Life in Hemophilic Patients

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Department of Internal Medicine Assiut University

Abstract

Background: Hemophilia is a hereditary, persistent, hemorrhagic condition caused by a coagulation factor deficiency. Long-term spontaneous bleeding of joints and soft tissues can have a negative impact on a patient’s quality of life (QoL).
Aim of the Work: This research describes the health status, health care received, and their impact on the QoL in patients with hemophilia.
Patients and Methods: This case-control study was conducted on 200 subjects: 100 patients with hemophilia, hemophilia A (HA), and hemophilia B (HB), attending outpatient clinical hematology clinics of the Internal Medicine Department, Assiut University Hospital in the period first of January 2021 up to the end of December 2021, and 100 age and sex-matched controls. All studied participants were subjected to a full history taking regarding their socio-demographic characteristics and to complete an SF-36 Qol questionnaire (Short form 36 QoL questionnaire).
Results: Hemophilia studied participants reported significantly lower QoL than control groups regarding all SF-36 items (general health, limitation of activities, physical health problems, emotional health, social activities, pain, and energy and emotions). Younger aged patients (≤ 25 years), unemployed patients, those with HA, and those with severe hemophilia had lower QoL scores compared to their counterparts.
Conclusion: The QoL of the hemophilia patients was considerably low. To overcome this issue, social support needs to be enhanced.

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